By now you have heard of HOPE Week. What’s going on right now is pretty special.
The Yankees today are hosting a group of kids and teenagers from the XP Society’s Camp Sundown in Craryville, N.Y. Xeroderma Pigmentosum is a rare genetic disorder that prevents individuals from going outside in sunlight. Any UV light causes burns and most patients do not live beyond the age of 20.
The kids and their parents watched the game from a suite and for most of them, it was the first big-league game they had ever seen. Now the the group is taking part in a carnival right on the field.
There’s food, a bouncy castle, PlayStation on the big scoreboard, Whiffleball games, soccer games, etc. A bunch of Yankees — including Jorge Posada, A.J. Burnett, Jose Molina, Alfredo Aceves, Brett Gardner and Cody Ransom — are on the field taking part. I also noticed Brian Cashman, Lonn Trost and others there along with Jason Zillo and his staff.
It’s 1:48 a.m. For XP patients, this is the only time of the day they can be outside. They’ll leave the Bronx in two hours to make sure they get back to their camp before sunrise.
The Yankees are really distinguishing themselves as an organization this week. These activities go beyond community service, this is really caring about other people.